We had hoped my 90-day tests at UCSF would show the experimental treatment I received back in June is working as designed. As I described on some social media posts, we looked at the situation and possible outcomes this way …
We could learn the trial is working. That means a trip to Survivor-Land and regular follow-up scans.
We could learn we still don’t know definitively if the trial is working and there hasn’t been a significant negative change in my condition. That means staying the course in the clinical trial.
We could learn of a significant negative change. That means we come off the clinical trial and we develop a new plan of action.
– We’ve helped advance cancer research that might help thousands of other patients. We started my clinical trial effort 1 year ago this month (True dat!). UCSF and PACT Pharma now have mountains of data from my case. And, I will continue to check in with clinical study 1x per year in the years ahead. Even though I’m out, my progress and outcome will be monitored.
– Our bigger picture progress continues to be miraculous. November 1st will mark the beginning of my 5th year on cancer mountain. The initial plan we developed 4 years ago with my amazing medical team at UCSF (and St. Joe’s Health) has been an incredible success. We knew heading into this there is no cure for my type of cancer. Our goal was/is to keep me in a steady-state and wait for a breakthrough to come along. It’s undeniable that we’ve been wildly successful in that mission to date. And, moving forward, we continue to have a wide range of treatment options at our disposal. You really cannot ask for much more on this nasty hill.
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Help Team Crafty launch the new ‘Trailblazer’ merit award with ASCO’s Conquer Cancer Foundation.